Rare Diseases Day – Express Healthcare

The long wait and the struggle of families battling NF1- A rare form of Neurofibromatosis

Supreme Court order risks interrupting treatment for young woman with Spinal Muscular Atrophy

How patient engagement is crucial in rare disease management

ORDI to organise 8th edition of RaceFor7 to raise awareness for the rare disease community

1 in 10 patients receive disease-specific treatment in India