Anil Nair, CEO, St Jude India Childcare Centre highlights that the concept of secondary care in pediatric oncology encompasses a range of services beyond primary treatment, including rehabilitation, psychological support, and long-term follow-up plans. Last year, there has been a notable expansion in these services, tailored specifically to the needs of young cancer patients
Pediatric cancer care in India aims to be a beacon of hope and resilience for young patients. The journey of a child battling cancer is not just a medical challenge; it’s a journey that tests the strength of families, the dedication of healthcare providers, and the very fabric of societal support. In recent years, India has made significant strides in transforming pediatric cancer care into a more accessible, effective, and empathetic journey. The introduction of policy changes and technological advancements is not just a testament to the progress in medical science but also a heart-warming story of a society rallying to uplift its most vulnerable members.
Secondary care: A game changer
The concept of secondary care in pediatric oncology encompasses a range of services beyond primary treatment, including rehabilitation, psychological support, and long-term follow-up plans. Last year, there has been a notable expansion in these services, tailored specifically to the needs of young cancer patients.
- Rehabilitation services: The focus on physical rehabilitation has grown immensely. Hospitals and care centres now have specialised pediatric physiotherapists who work closely with children to help them regain strength and mobility lost during cancer treatment. This approach not only aids in physical recovery but also boosts the child’s confidence and independence.
- Psychological support: Recognising the emotional and mental toll of cancer, there has been a surge in psychological support services. Child psychologists and counselors are now integral members of the cancer care team, providing therapy to help children and their families cope with the challenges of a cancer diagnosis and treatment.
- Educational and social support: Another significant aspect of secondary care is the emphasis on the child’s education and social life. Initiatives like in-hospital schooling and social groups have been instrumental in providing a sense of normalcy and continuity in the lives of young patients.
- Community involvement: There’s been an increase in community involvement and awareness. Fundraisers, awareness campaigns, and volunteer initiatives have not only raised substantial funds for research and care but also brought attention to the needs of these young patients.
Success stories: A source of hope
Amidst the challenges, this year has also been a beacon of hope, highlighted by numerous success stories.
Anchal Suresh Kumar’s story is a heart-warming testament to the resilience often seen in young cancer patients. Originally from Bihar, 13-year-old Anchal came to Delhi in 2014 for blood cancer treatment. The initial challenge for her family was adapting to a large city and finding a clean, supportive place to stay during her treatment. Fortunately, they found refuge in a center dedicated to helping families like theirs, who have no choice but to come to big metro cities from remote villages and towns for their child’s cancer treatment. Here, Anchal and her mother participated in stress-relieving activities like art and crafts sessions, which not only provided a therapeutic outlet but also helped them bond with others in similar situations. After eight months of treatment, Anchal emerged as a cancer survivor. Back home, she is now studying in Grade 8 and enjoys hobbies like cooking and sketching.
In a similar vein, the story of 17-year-old Pradip Pal from West Bengal highlights the intersection of healthcare support and educational perseverance. Diagnosed with Hodgkin Lymphoma, Pradip’s treatment began in 2018. During this challenging period, Pradip and his family, who are farmers, found essential support in a center in Kolkata that provided them with a safe haven in an unfamiliar city. This support extended beyond just healthcare, as Pradip received educational assistance to keep up with his studies. His determination and hard work, coupled with the support he received, led to his remarkable academic success.
Pradip’s and Anchal’s journeys are not just stories of battling and overcoming cancer but also a narrative of how holistic care and support can pave the way for achieving personal goals, even in the face of daunting challenges. Such tales of perseverance stand as a shining example of how support and care can turn a challenging journey into a story of triumph.
Transformative moments in healthcare
The past year has been punctuated with moments that have reshaped the landscape of pediatric cancer care.
- Collaborative efforts: The collaboration between hospitals, research institutions, and charities has been a key factor. These partnerships have facilitated advancements in treatment and care, ensuring that resources are utilised properly.
- The power of research: Ongoing research in pediatric oncology has played a crucial role in understanding the unique aspects of cancer in children. This research has led to more effective and personalised treatment plans.
- Technological advancements: In India, the integration of technology in pediatric cancer care has been transformative. Advanced diagnostic tools like Next-Generation Sequencing (NGS) are now commonplace in hospitals, enabling precise identification of cancer types for tailored treatments. Telehealth services have become crucial, especially in remote areas, allowing pediatric oncologists to consult remotely and provide continuous care. The rise of mobile health (mHealth) applications is also notable, aiding in the efficient management and monitoring of treatment regimens. Furthermore, the increasing use of Artificial Intelligence (AI) and Machine Learning (ML) in diagnostics and treatment planning is enhancing early detection and enabling more personalised treatment strategies. These technological advancements are reshaping pediatric oncology in India, making treatments more accurate, accessible, and efficient.
- Policy changes: Recently, India has witnessed significant policy changes that have bolstered pediatric cancer care, marked by increased government and private funding for research and focusing on developing more effective and less toxic treatments. Health insurance policies have evolved, notably with schemes like Ayushman Bharat, to include comprehensive cancer care, offering financial relief to families facing expensive treatments. The government’s integration of pediatric cancer into its National Cancer Control Programs highlights a commitment to enhancing awareness, early detection, and affordability of treatments nationwide. Collaborations with international organisations like the WHO aim to align India’s pediatric cancer care with global standards. Additionally, the development of India-specific treatment protocols takes into account the unique genetic and environmental factors affecting Indian children, personalising care to their specific needs. These policy shifts represent a comprehensive approach to improving the landscape of pediatric cancer care in India.
The year has been a testament to the resilience and fortitude of young cancer patients and the dedication of those who care for them. The journey ahead remains challenging, but the progress made in this year of healing serves as a solid foundation for continued advancements in pediatric cancer care.
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