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National Policy for Rare Diseases

9,675 patients enrolled since November, 2019 on National Registry for NRROID portal: MoHfW

For FY 2023-24, Rs. 92.84 Crore allocated for treatment of rare disease’ patients in designated Centres of Excellence under…

Rare disease treatment policy in India: Accessibility, affordability and acceptability are key

On Rare Disease Day, Anjali Taneja, Associate Director, Science Policy Initiative; Alok Bhattacharya, Professor and Head of the…

Govt proposes to treat rare disease patients at one-time treatment cost of up to Rs 15 lakh

Under the draft National Policy for Rare Diseases released recently, beneficiaries would not be limited to Below Poverty Line…