Cure SMA Foundation acknowledges budget allocation for rare disease treatments Advocacy group urges swift implementation of procurement process to benefit patients
1 in 10 patients receive disease-specific treatment in India There is lack of awareness about rare diseases in India which makes it imperative to come up with comprehensive preventive…
HC asks AIIMS to provide treatment to minor suffering from rare disease Justice Navin Chawla asked the All India Institute of Medical Sciences (AIIMS) to provide the necessary treatment to the…
Govt proposes to treat rare disease patients at one-time treatment cost of up to Rs 15 lakh Under the draft National Policy for Rare Diseases released recently, beneficiaries would not be limited to Below Poverty Line…