Rare disease treatment: Look at emerging therapies and medications
Dr Anup Rawool, Consultant in Clinical and Cancer Genetics at Sahyadri Hospitals, Pune, discusses innovative therapies and…
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Browsing Tag
rare diseases
Sheffield researchers contribute to discovery of 69 new genes linked to rare diseases
A study using data from the 100,000 Genomes Project identified previously unknown genetic variants associated with rare diseases,…
India’s first National Rare Disease Conference concludes in Mumbai
Bai Jerbai Wadia Hospital hosts ‘Cure & Care for the Rare,’ highlighting advancements, policy frameworks, and patient support…
The long wait and the struggle of families battling NF1- A rare form of Neurofibromatosis
Dr Ratna Devi, CEO, DakshamA Health; Director, PAIR (Patient Academy for Innovation and Research); and Steering Committee Member…
10th Edition of RaceFor7 to flag off in 21 cities across India
Racefor7 2025 aims to drive policy-level impact and enhance access to treatment across the country
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Princess Royal opens pioneering Gene Therapy Innovation and Manufacturing Centre
The new facility aims to accelerate gene therapy development for rare diseases and enhance clinical trial access
Health Ministry considering setting up Technical Expert Group on Spinal Muscular Atrophy
The conference hosted two symposiums with 12-15 sessions each for patients and families as well as policymakers, clinicians,…
Advanced therapies for rare disorders in India
Dr Tejinder Kataria, Chairperson, Radiation Oncology, Cancer Care, Medanta, Gurugram highlights that the potential of advanced…
US approves first gene therapy for children with rare genetic disease
Orchard, which was acquired by Japanese pharmaceutical firm Kyowa Kirin for $477.6 million last year, said it will provide details…
How patient engagement is crucial in rare disease management
Dr Atul Mohan Kochhar, CEO, NABH highlights that he last two decades have seen the emergence of new therapies for a few rare…