Health Ministry considering setting up Technical Expert Group on Spinal Muscular Atrophy
The conference hosted two symposiums with 12-15 sessions each for patients and families as well as policymakers, clinicians,…
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Browsing Tag
spinal muscular atrophy
SMArtCon2024 to focus on building a sustainable rare-disease ecosystem
It aims to bring together patients, caregivers, clinicians, researchers, and therapists to share insights about building a…
Early diagnosis is key in managing spinal muscular atrophy for patients’ lives
Dr Siddharth Shah, Consultant Paediatric Neurologist & Epileptologist, RICN, Ahmedabad explains that newborn screening serves…
EMA grants conditional marketing authorisation in EU for gene therapy Zolgensma
To treat babies, young children with spinal muscular atrophy